Questions to Bring to Your DBS Surgeon: The Checklist You Need

Medicine Made Simple Summary

Considering Deep Brain Stimulation (DBS) can feel overwhelming. Brain surgery is a big decision, and it’s natural to feel nervous. One of the best ways to prepare is to ask your surgeon the right questions. This article gives you a patient-friendly checklist of what to ask, covering safety, recovery, results, and life after DBS. By the end, you’ll have the confidence to walk into your appointment ready to talk openly with your doctor and make the decision that fits your life.

Why Questions Matter Before DBS Surgery

When a doctor first suggests DBS, patients often feel a mix of hope and fear. Hope, because this surgery might give them back independence and reduce their symptoms. Fear, because the word “brain surgery” sounds frightening. Asking questions allows patients and families to take control of the process. Instead of feeling like a passive participant, you become an active partner in your care. Doctors expect and welcome questions. Neurosurgeons and neurologists know DBS is a major choice, and they want patients to understand what lies ahead. A checklist of thoughtful questions ensures you leave the clinic with clear answers and realistic expectations.

The Ten Most Important Questions

1. Am I a good candidate for DBS?
Not everyone qualifies for DBS. Some patients respond well to medications and don’t need surgery yet. Others may have medical conditions that make surgery unsafe. Ask your surgeon what makes you a candidate, and if there are reasons you might not qualify right now.

2. What benefits can I realistically expect?
Patients often hear stories of life-changing results. While DBS can be transformative, outcomes vary. A surgeon can explain what symptoms it will help most, such as tremor or motor fluctuations, and which symptoms may remain unchanged.

3. What are the risks and side effects?
Every patient needs to hear both the good and the bad. Ask about risks of surgery, like infection or bleeding, and long-term side effects, like speech changes or balance issues. Understanding the full picture helps you weigh benefits against risks.

4. How experienced is your surgical team?
Experience matters. Studies show patients have better outcomes when their surgeons perform DBS regularly. Ask how many surgeries your team performs each year and what their complication rates are.

5. Will I still need medication after DBS?
DBS often reduces medication but rarely eliminates it. Some patients can cut doses in half, while others continue on lower doses for years. Your doctor can explain what’s typical for your condition.

6. What does recovery look like?
Recovery is not just about surgery. Ask how long you’ll stay in the hospital, when stitches are removed, and when you’ll feel “back to normal.” Ask how soon you can return to work, driving, or hobbies.

7. How will my device be programmed?
DBS is not one-size-fits-all. After surgery, doctors fine-tune the device in programming sessions. Ask how many sessions you’ll need, how long they take, and whether you can access programming adjustments if you live far away.

8. What are the long-term costs and maintenance needs?
DBS has long-term expenses, such as battery replacements. Some devices last 3–5 years, while rechargeable ones can last more than 10 years. Ask about insurance coverage and out-of-pocket costs.

9. How will DBS affect my daily life?
Ask about changes in speech, energy, mood, or daily activities. Patients often want to know if they can still exercise, travel, or pass through airport security. A surgeon can explain what adjustments are likely.

10. What support will I have after surgery?
Ask about follow-up care, rehabilitation, and patient support groups. Having a strong support system makes recovery smoother and more reassuring.

The Power of Writing It Down

Appointments move quickly, and it’s easy to forget questions. Patients often walk away remembering only half of what they wanted to ask. Write down your questions in advance, or use this checklist as a starting point. Some families bring a notebook to record answers, or even ask to record the conversation for reference.

Conclusion

If you’re considering DBS, prepare your checklist today. Bring your questions to your surgeon, ask them openly, and make sure you leave with answers that make sense to you. The more informed you are, the more confident you’ll feel about your decision.